I have a whole list of subjects I want to delve into, but
for now, I am feeling like I want to write out some of the “bones” of my story,
for my own recollection later, if nothing else, and for anybody who might start
following my story and be interested.
My mom died about 5 ½ years ago, and my dad hasn’t been the same
since. He still cries several times a
day when he thinks about her, and his memory, vision and self care have all
gone steadily downhill, as I wrote about in the previous post. Last year, during a visit to help him prepare
for cataract surgery, I decided it was time to bring up the question of what he
wants to do when the time comes he can’t live on his own anymore. Unfortunately, he only had one situation that
was acceptable to him, and it is the one that doesn’t really work for anybody
else. The only thing my dad wanted was
to live in the house he shared with my mother until he dies, but he didn’t want
a stranger coming in to care for him either.
There are several people he would agree to live with, but nobody wanted
to disrupt their entire life to move in with my dad, and nobody was close enough
to offer daily care when it got to that point.
He refused to even consider a second choice, although I offered him
several.
Fast forward to my recent visit, and it was clear some
decisions were going to have to be made, whether my dad was willing to be the
one making them or not. The loss of his license was the final blow for me in
knowing he shouldn’t live alone as he seems confused about how to use the
transportation options available to him, and then a large portion of his cash
disappeared after a couple shopping trips.
As much as I didn’t want to admit it, the time had come for a change. He
was still really clear on his moment to moment decisions, when I could get him
to focus on a topic, and he was still just as adamant about not leaving his
house, so what to do?
My husband and I had many, many long conversations. We turned over all sorts of options, and the
plan has shifted and changed even in the last couple weeks. As of this moment,
the plan is for our whole family to drive to California at the end of February
with a trailer full of essentials. Then
my husband will fly back to Oregon and start looking for a small apartment
close to his new job. He will finish up
with our current house, taking what will fit to his new place and putting the
rest in storage. This move will be the
most complicated one I have ever undertaken as I am packing things right now to
go to 3 different places! Then I get to
start doing the same at my dad’s house, going through hutches and buffets and
such to see what I want to keep or ask my siblings about or sell. My mom was an antique dealer and has volumes
of glassware, china and other collectibles, so it is going to be a monumental job. My husband is hoping to come to CA as often
as possible and even work there remotely part time if it is feasible.
My ultimate goal is to talk my dad into coming back to
Oregon with us. It isn’t going to be
easy, but I think it is a better choice than Assisted Living. I just hate that I am probably going to end
up being the one to make the choice for him.
I have gotten the advice from his doctor and some friends not to give
him a choice, but that is so against my nature.
One of my main focuses as a parent is to give my kids as much choice in
their lives as possible, and isn’t this supposed to be like having another
child? I guess it is different with
Alzheimer’s or if somebody just won’t make a choice, but it is still really
distasteful.
I know this is only the beginning of all the decisions I am
going to need to make, and I have always been terrible at decisions. I tell people all the time, “I am horrible at
decision making, but give me a plan, and I will execute the hell out it.” I am more of a manifestor, so I am way out of
my comfort zone. Which things do I
keep? Will I regret it if I don’t keep
certain things? How do I handle finances
around cohabitating? Is my dad at the
point I should set up my conservatorship?
Do I try to give my dad a choice about where he wants to live? Ack, that is a decision about a decision! My head may explode. So this experience should be hard but also
an opportunity for personal growth.
Trying to focus on the positive!
My hesitancy about my dad coming to Portland is that he is
used to the Southern California climate, and he spends a fair amount of time outside,
but I have to think being with family trumps anything else, and his doctor
agreed with that. Also, at one point
when we were talking about when I was going to be leaving, he said, “Take me
with you!” He said in a joking tone, but
he said it. In my head I thought, “OK,
once is enough! He did actually consider
it!” He has NEVER even remotely
considered the idea of Assisted Living.
He didn’t even like going to the Senior Center because he said people
were cliquey, so I think he would have a really hard time adjusting to a bunch
of strangers.
Well, that is most of the story so far, for today. I know things could change at any moment if
something happens to my dad. My adult
daughter is staying with him this week, and my sister-in -law plans to drive
out to him twice a week to check for store run needs and such, but I worry
about the times he will be alone. Taking
things a day at a time.
Just about every piece of advice I have read or gotten says
not to uproot your family to take care of a parent, but I think we will be OK. Our kids are not in school, and they have many
friends they connect with virtually. My
husband and I both have family in the area and my husband’s boss seems really
flexible. I am a stay at home mom, so I
have the time to devote to this. All I
know is that it would break my heart to see what my dad would go through if I tried
to make him move in any rushed way. So
this is my compromise. Make gradual
changes. Plant seeds. Keep my goal in my vision. And try to not look like the picture below
too often.
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